In late August 2015, we found out we were expecting our first child. We were so excited that we were finally going to be parents! The pregnancy seemed to be going well, and our baby was right on track. We found out at 12 weeks that it was going to be a BOY! We were thrilled! At our 20 week appointment in January 2016, our world crumbled. We found out our son had a brain malformation and other potential medical issues. We chose to continue the pregnancy, with careful monitoring of the high risk pregnancy, even though we knew there was a chance that our son would not make it to full term.
On March 21, 2016, my water broke at 30 weeks. Fortunately, thanks to the research done by March of Dimes, I did not go into labor. I remained at Riverside Methodist Hospital for 4 weeks. During that time, I received steroids, medications, treatments, and monitoring that kept our son safe, prevented labor, and promoted lung and other organ development of our baby. Our son, Micah James, was born on April 14, 2016. He was born at 34 weeks, 6 weeks premature. He weighed in at 6 pounds 4 ounces, which is unheard of for a preemie!
Thanks to the research funded by the March of Dimes regarding premature births, our son survived, and lived for 96 short days. He unfortunately was affected with a rare genetic disorder called Severe Joubert Syndrome, and passed away on July 19, 2016. He was our beautiful, strong, brave little boy.
Despite our grief of the loss of our only child, we choose to share Micah’s story and honor our son. Micah was one of the thousands of babies affected by premature birth. It is our goal to help spread awareness and raise money for continued research and support of premature births, birth defects, and infant mortality. We are excited to be chosen as the 2017 Night Moves Ambassador Family! It is a privilege to share our story, and to bring more awareness to the work that the March of Dimes does every day. Please consider making a donation, and/or joining our team, Miles for Micah, at the event!